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Tuesday, April 19, 2016

I am Inconvenient

Reprinted from Yes, That Too

Gifted students are inconvenient. They get bored, sometimes hyper because of their boredom. They want to know why things work, not just what you do. Or they are gifted in one specific area that isn't covered much, and they drag that area into everything.

Disabled students are inconvenient.

How varies by disability.

The student who uses a wheelchair takes up more space in the hall.

The student who is blind needs braille textbooks, a screen reader, maybe both.

Because these disabilities are visible, are obvious, something is done (not necessarily something good- exclusion is often the thing.)

They get their wheelchair, or they get their braille, or they get sent to a special school where everyone is blind and everyone uses braille and it's not even a special accommodation.

You can't pretend it doesn't exist simply because it is inconvenient to deal with.

You decide to do nothing about it, but you can't pretend it's not there.

Autistic? Depressed? OCD?

They don't want to deal with that.

So it just doesn't exist.

We don't have those problems here.

They do, of course, but they pretend it's not there.

With no obvious difference, nothing you can see that says there is something different, they can pretend.

They can pretend that we are making things up.

They can pretend that we are just being difficult.

They can pretend that we are simply lazy.

They can pretend that our inconvenient behaviors are there for any reason at all.

So it is for a reason which makes it purely our fault.

So it is for a reason that does not require accommodation or education, but shame and punishment.

It exists, but they can pretend it doesn't.

And then we pretend it doesn't exist either, not wanting to face what they dish out when we try to make them see what is in front of their eyes.

Disability becomes an inconvenient part of ourselves that we would simply rather ignore, and then they have won. I refuse.

I will be inconvenient, and they will just have to deal with it.

Thursday, March 24, 2016

Isn't it time to leave your comfort zone?

Reprinted from Yes, That Too because one of the other moderators totally said I should.

I get asked this... sometimes. Most recently, I got asked this when I said I planned to stay in the same housing I'd had for undergrad through my doctoral program, since I'll be staying at the same university for it.

And yes, it is time to leave my comfort zone! I'm moving from mathematics, which has been a bit of a home to me since ever, and mechanical engineering, which I studied as an undergraduate, to neuroscience and computer engineering. That's a departure from my comfort zone. I'm walking a bit into the lion's den to be on a project designing technology for autistic people, likely working with parents and autism professionals in addition to my major professors. (I'm pretty sure I'm going to need to talk to parents and professionals, actually, since, as per usual, folks are thinking about children and since I'm apparently the autism expert on the team in addition to the technology and neuroscience know-how I'll be picking up during my studies.) That's an even bigger departure from my comfort zone.

My living arrangements are not the way it's time to leave my comfort zone. There's a few reasons for that.

Reason the first: Too many things changing at once is really hard for me! If I'd gotten into, say, MIT or Berkeley or some of the other schools I applied to, I'd have had to change my living arrangements in order to attend those schools. Since it would have been necessary, I'd have done it, but since it's not necessary, change for the sake of change and leaving my comfort zone is not going to be happening. I stick to changes that have good reasons, because change is hard.

Reason the second: My needs in terms of daily living might not be particularly complicated, but if they are not being met, bad things happen. I need easy access to food without needing to think much about how I'm getting said food or what I'm eating. That means I need a meal plan. My current housing comes with a meal plan, which is good. I also need to be able to avoid loud, bright places full of people. The main dining halls are definitely loud, bright places full of people, and we're not allowed to take our food out of the dining hall. Like many others, I know how to smuggle food out of the dining hall anyways, but when I am overloaded enough that I need to take my food out, the extra steps involved in doing so are going to be a problem. That means I should really be on a meal plan where I can take my food out of the dining hall. My current housing's meal plan allows this! So my current housing meets those needs, and finding other ways to meet those needs is effort that I don't need to make right now.

Reason the third: I don't drive. I passed my road test about two weeks ago now, so I legally can drive, but over in reality-land I don't drive. Driving tends to knock out my ability to speak, often for an hour or two after I'm done driving. (Even though I have no issues with going to class, work, or practice while non-speaking, I won't knowingly do things that make me lose speech for class, work, or practice.) Given that public transportation around the university is extant but not great, that means I should be living on campus. 

In combination, these reasons mean I should stay put. It's actually tricky to find housing on campus as a graduate student, and the on campus options for graduate students don't come with meal plans at all. It's possible to buy individual meals at the main dining hall (or at my current housing, though we don't get to take food out when we're buying individual meals as non-residents,) but having that as "one more option" as opposed to "the default I don't need to think about" won't actually increase the probability of my eating meals. 

So yes, I should leave my comfort zone sometimes. I should also think carefully and critically about when, where, and how I leave my comfort zone.