tag:blogger.com,1999:blog-2799087240760337340.post8838188235139852828..comments2024-01-28T00:21:38.809-08:00Comments on We Are Like Your Child: Allistic to Neurodivergent K Interpreters Are GOOD.Alyssahttp://www.blogger.com/profile/06413844178426365789noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-2799087240760337340.post-21117504114188810662013-08-14T00:21:02.401-07:002013-08-14T00:21:02.401-07:00Jo, I understand where you're coming from, it&...Jo, I understand where you're coming from, it's basically that health professionals are all extremely bad at listening to others! It's why they say doctors make the worst patients, because they are not used to *not* being in a position of authority. So yes, we all have to deal with not getting heard at one point or another.<br /><br />The difference, which I think Neurodivergent K is talking about as well, is what the consequences are of not getting listened to. As a parent, it feels like not being taken seriously. As a disabled person, it can mean death. As with the adrenal example. So yeah. I'm glad you're reading things here that can help your son!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2799087240760337340.post-24491881861273201182013-07-28T05:18:54.286-07:002013-07-28T05:18:54.286-07:00Only just seen your response (didn't put the e...Only just seen your response (didn't put the email thingie on). I wasn't trying to appropriate your experience at all. Being a parent is totally different to being the person with ASD. As parents, more professionals do listen to us but many don't (Paediatricians being notorious for this!).<br />I also have the experience of professionals thinking I'm over-protective, exaggerating and generally thinking there is a simple solution I'm clearly not qualified to think of myself! Or coming up with weird ideas that have no relevance. Pre-diagnosis there is often a "Blame the parents" mind set too.<br />I'm sorry you read my comments as being dismissive. I have actually found this blog incredibly useful, my son is non-verbal so this has been a great way to get some little insight into how he may view the world. For that I thank you and apologise for my misunderstanding between us.Jo who can't think of a clever nicknamehttps://www.blogger.com/profile/02663450738390351663noreply@blogger.comtag:blogger.com,1999:blog-2799087240760337340.post-1620033233492982013-07-16T21:46:11.126-07:002013-07-16T21:46:11.126-07:00Wow. I need one of those. Problem is, I am the u...Wow. I need one of those. Problem is, I am the universal interpreter for our family. Mostly things go pretty well. But it takes all out of myself, I shut down later. And thanks for defining adrenal crisis, makes me wonder about both Rafi and me, our BP teds to drop like a rock when ill or injured, without blood loss....plus he gets into cyclical vomiting ... will def. have to check things out.<br />Janesprintshttps://www.blogger.com/profile/18445143407327230213noreply@blogger.comtag:blogger.com,1999:blog-2799087240760337340.post-20963615947338499862013-07-15T14:39:11.993-07:002013-07-15T14:39:11.993-07:00It's not at all like being a parent.
Parents ...It's not at all like being a parent.<br /><br />Parents are thought of as people. Your words are, in fact, valued by professionals.<br /><br />It requires a Real Person to repeat it for my words to be anything but attention seeking or being an asshole or 'misunderstanding' or 'not able to understand own body signals'. Same exact words. He actually has less information in a lot of these areas than I do, and obviously cannot feel what I feel because bodies don't work that way.<br /><br />It's different. It's actually really dismissive to try to appropriate my experience as a disabled person by trying to say it's just like being a parent of one. It's not the same at all.Neurodivergent Khttps://www.blogger.com/profile/02815685510033244185noreply@blogger.comtag:blogger.com,1999:blog-2799087240760337340.post-54121198351224134282013-07-15T11:52:26.844-07:002013-07-15T11:52:26.844-07:00I've just found your site. It's really in...I've just found your site. It's really interesting so far. I've worked with and helped and got in the way of autistic people as a teacher. I'm now retraining for human resource management and the insights you are sharing will, I hope, help me support adults in the workplace. Twenty Ottershttps://www.blogger.com/profile/09566465586256958438noreply@blogger.comtag:blogger.com,1999:blog-2799087240760337340.post-229282704476072322013-07-13T14:37:28.021-07:002013-07-13T14:37:28.021-07:00 I have a great example.
I am autistic and my all... I have a great example.<br /> I am autistic and my allistic daughter has a lot of medical issues. I told her pediatrician every time we saw her (2-8 times a month) that my daughter was barely sleeping and took literally all day to consume enough calories to survive.<br /> FOURTEEN MONTHS LATER, her father walked in, talked with the doctor for five minutes, and walked out with two prescriptions and several referrals.<br /> I know parents struggle to get professionals to take them seriously, but if it were the same, my partner and I should have had similar luck. Fourteen months vs. five minutes is a significant discrepancy.Myriahttps://www.blogger.com/profile/07501735120663777532noreply@blogger.comtag:blogger.com,1999:blog-2799087240760337340.post-29635635560335614992013-07-13T14:30:26.272-07:002013-07-13T14:30:26.272-07:00Here's a dream: Maybe someday it will be consi...Here's a dream: Maybe someday it will be considered as unthinkable to deny/not provide a cognitive interpreter to someone who needs one as it is to deny/not provide any other kind of interpreter (I know the latter still needs work too...).Myriahttps://www.blogger.com/profile/07501735120663777532noreply@blogger.comtag:blogger.com,1999:blog-2799087240760337340.post-90455548119864512652013-07-13T14:15:01.465-07:002013-07-13T14:15:01.465-07:00I'm inclined to disagree that you are treated ...I'm inclined to disagree that you are treated exactly the same. Look, I know you mean well, and many professionals are far more revered than parents. I get that. But there is a huge difference between the way my (allistic) spouse is treated by people in regards to speaking about our autistic children and the way they treat me. Like K said, we aren't regarded as real people. But while parents may be regarded as ignorant, and have their voices ignored, they don't have the same experiences that we as autistic people do. Anonymoushttps://www.blogger.com/profile/06773178454157336375noreply@blogger.comtag:blogger.com,1999:blog-2799087240760337340.post-25944557393021943872013-07-13T01:14:43.336-07:002013-07-13T01:14:43.336-07:00Great post, very interesting. My son has two of t...Great post, very interesting. My son has two of these, we're called his parents! But we do have the same problems as you do. Quite often the professionals will only hear our words when they are repeated by another professional. After all, what do we know, we're only with him 24/7?<br />Jo who can't think of a clever nicknamehttps://www.blogger.com/profile/02663450738390351663noreply@blogger.com